The artist for the above image is @Kayas_Kosmos.
A few notes: When I first got into advocacy for Autism – it was a minefield and I made a lot of errors – it can be brutal if you are new – there’s no one right way to refer to yourself but the community by a significant margin prefers Identity-First language (e.g. Autistic, Autistic community). Person first language implies that you have autism – as though it’s a disease.
I am Autistic
I do not believe Autism is something that needs to be cured – I need accommodations – not eugenics. Person with autism personally denies me my identity – I am Autistic – with all it’s struggles and it’s benefits – I will always be inseparable from Autism. It’s not just something I “have” – it’s a core part of who I am.
I use capitalised language after finding this passage in ‘Sincerely Your Autistic Child‘.
“You’ll also see some authors capitalize “Autistic” in a similar way that many Deaf or Black people capitalize those terms out of a sense of identity or pride.”Sincerely Your Autistic Child
I am proud of being Autistic. It’s not something to be ashamed for – if you do any research or read the rest of my blogs you’ll see it’s deeply affected me – I have significant trauma due to being Autistic – but it’s also the thing I love about me the most. I hold these two truths in my head at the same time. It’s caused me the most harm, but that’s due to it not being understood.
A quick note on my other neurodivergence
I consider myself to be an ADHD / OCD / Dyscalculic / Dysgraphic person too. They are core parts of my identity. Every one of these makes navigating the neurotypical world a struggle frequently – but how can I say I don’t want to have these – they are also me too. They come with unique ways of making accommodations for my own way of thinking. I love these too. I wish the standard was for all people to be proud of being different through their own unique neurotypes – the world would be a better place, if everyone loved and accepted the things they cannot change.
The exception… (maybe?) Trauma, disease.
I do refer to myself as a person with cPTSD / Crohn’s Disease.
I can also see some small benefits in having cPTSD, but it’s very much outweighed all the time by getting triggered and losing frequents amount of time and sleep – not to mention that it can trigger a meltdown/shutdown.
Maybe one day I’ll get closer to controlling it. Until then… It’s something I have.
Words I prefer
Māori words for Autism
Kura = Gift/Treasure,
Uru=in(pērā ki te Ruru)
pare = around your head
(ko te rae a te Ruru) = Kura Urupare.
Kura Urupare = Gift of response/sensories
“my/her/his/their own time and space”
Further Information and Perspectives
Daily blog challenge
I will be writing every day on being Autistic for April using this list of prompts:
Alt-Text Format with links to other blogs – Autistic Acceptance Month – 30 Days of Acceptance and appreciation:
- Day 1 – Introduction
- Day 2 – What I love about being Autistic is…
- Day 3 – My diagnosis/discovery story
- Day 4 – Reactions to “coming out
- Day 5 – Special Interests
- Day 6 – Supports and Appreciation
- Day 7 – The Autistic Community
- Day 8 – Favorite Autistic Blog
- Day 9 – Favourite Autistic-owned Business
- Day 10 – Sensory Life
- Day 11 – Stims
- Day 12 – Favorite Autism-charity
- Day 13 – Family
- Day 14 – Routine
- Day 15 – Everyone should know…
- Day 16 – Work/School
- Day 17 – Accommodations
- Day 18 – Someday…
- Day 19 – I hate it when…
- Day 20 – Communication
- Day 21 – One thing other people don’t understand
- Day 22 – Dispel a myth
- Day 23 – Can’t live without…
- Day 24 – Political Issue
- Day 25 – Symbols!
- Day 26 – Favorite Autism book
- Day 27 – Identity Language
- Day 28 – Dealing with meltdowns
- Day 29 – Famous Autistics
- Day 30 – Acceptance means…